Us

Us

Monday, June 15, 2015

CIY camp 2015


Lord, help me.

I just sent 2 of my kids to CIY church camp for 5 days. 

Neither Keegan or Asher have been away from home for more than 1 night since they've been home! 


Now, I know they will have a blast!  I'm talking...life changing blast!

I remember church camp like it was yesterday.  Oh, the memories.


But this momma isn't ready for them to be growing up so fast.  Ugh.  My heart.

Prayers for safety, good health and to learn more about their own relationship with God!  What a fun week it's gonna be!  You kids enjoy every moment....because you're gonna blink...and it's gonna be 25+ years in the future....and you'll be watching your kids go off to camp.....(of course, when we went to camp it wasn't on snazzy chartered buses...nor was it at Johnson University in Knoxville!)

mri results

We've had the results since last Tuesday....but I just haven't had the time and energy to type it all out!  Yes, lazy.

Here's the jest of it: 
- There truly were no surprises.  Nothing unexpected.
- Hope did indeed suffer a significant stroke last May in China.  It appears the damaged portion of her brain basically died and the body re-absorbed it...leaving a decent sized hole.  (back left section of the brain)
- Hope still has spinal fluid built up in the right section of her brain.  The fluid is taking up space where brain matter should be.  Unclear as to whether it's a blockage or a duct issue...too narrow...most likely a neurosurgeon will want to take a look at her.  (until this issue is dealt with...she runs the risk of another stroke...)
- Her neurologist feels certain her brain will continue to try and make new connections to compensate for her losses due to her stroke and hydrocephalus. 

Now we wait to hear from the neurosurgeon.  He is supposed to review her images tomorrow and we pray that we get an appointment to see him ASAP!

I feel certain Hope has brain surgery in her near future!  Praying for God's guidance and wisdom for the doctors! 

Overall, she is doing amazingly well.  She is adjusting and seems quite happy!

We have already seen quite the improvement in her in just 5 weeks.  When Adam received her in China, she could barely sit up for a few minutes at a time.  She can now sit up as long as she wants, she army crawls, she can go from laying to sitting and sitting to laying, she can roll over, etc!  Go Hope! 

She was suffering from malnutrition...weighing in at a whopping 20 pounds upon arriving home.  I don't know what she weighs currently...but I know it's more!  She is filling out and looks so much better!  She doesn't drink NEARLY what she should so that's a daily struggle...I've never had to MAKE a kid drink before.  Uncharted waters. 

I can tell you ....I love her.  She is precious.  She is sweet.  She has a darling personality.  She is opening up more and more.  What a doll.

We are so blessed that God chose us to be her family.  I'm so grateful that God chose ME to be His!  All prayers are greatly appreciated as we work to get Hope all the help she needs!

first grocery trip


Hope got "broke in" today....she made her first trip to the grocery! 

You haven't been to the grocery....until you've been shopping for a family of 7.  Yep.  It's no longer an errand....it's an event.  (but it was a small trip that day)

She did great!  Appeared a bit bored by the end but all in all....a job well done young lady!

Shew! 

Friday, June 5, 2015

at home


Hope is settling right in at home.

She seems to be relaxing and allowing herself to open up more and more each day.  She shows us  little glimpses of her personality.....sweet baby girl.


These pictures were taken on Sunday after church.  She did great!  I felt certain that I would have to take her out during the service but to my surprise she was quiet most of the time and didn't seem phased by the loud music!  She fits right in at Southland! 



This one is just for fun.  Like brother...like sister!




And this one.....well....yes.  She's on the counter pooping.  Check out those toes!  Whenever...and wherever the mood strikes! 

Hope has a sedated MRI at Cincinnati Children's Hospital on Monday at 3:45pm.  All prayers appreciated!  I'm not as concerned about the test as I am that she has to fast all day.  Ugh.  And my girl likes to eat!  She is gonna be one ticked off little girl before the day is over!

Thursday, May 28, 2015

oh, I'm old.

Sorry for the silence.  But can I tell you....I'm old.  I mean really.

A two year old with special needs....well, she has needs.  I am worn out.  I tell ya....I'm old.

Each day Hope is bonding with everyone more and more.  She is doing really well.

She is eating pretty much anything....but I will tell you....she's not a big fan of anything that's really cold.

She is "going" fine...which is awesome!

Hope had her first medical appointment on Tuesday with our local pediatrician.  We love Dr. Hambrick!  He's amazing!

He did the preliminary "once over" exam and has referred out many tests and evaluations.

She is sleeping through the night....YEAH!! 

And really...she's just cute.  I mean look!

 
And it appears her siblings think she's pretty awesome, too!



We are all so grateful that she is home! 

Please continue to keep our girl in your prayers! 

Hope's first appointment with Cincinnati Children's Hospital (neurology dept) is Monday!  Yes, THIS Monday!

Sunday, May 24, 2015

home

What can I say?  She's a living doll!  She is so stinkin' tiny.  I mean. Tiny.

Our sweet little girl has a long road ahead of her...but I am so grateful that she is home.  She is loved.  She is cherished.

One less.  One less orphan.  One little girl that has a mommy and a daddy.  Praise God!

Enjoy!


Sweet baby.  I promise this is the last plane ride for a while....precious face.


 
TEAM HOPE!!!
 
 
 
Some very anxious Farley's!!!
 
THERE SHE IS!!!
 









Hope meeting Nannie!


Hope meeting Grandma!



Hope meeting MOMMY!



The Farley Five! 


Lucy's got the luggage!  Thanks girl!




Oh yes she is!!!  So grateful!  (artwork by Keegan)

Friday, May 22, 2015

delayed...

My sweet husband and my newest baby were supposed to arrive in Lexington this evening...late. 

But flights were delayed...and then delayed...and well, they are/were delayed!

My man is beyond exhausted and I know he just wants to get HOME!  As much as we want him home...I have a feeling he's a little more desperate than we are! 

As it stands...I believe he won't make it home today.  He will be having to stay overnight in Detroit and fly the rest of the way home tomorrow!

Prayers are greatly appreciated for him and poor little Hope.  I bet that girl is about to lose her mind!  (along with daddy)

So...the family reunion will have to wait one more day.

Thanks again for following along. 

And more importantly...thanks for the prayers!